We've both had a weird sort of day. People have been on Facebook posting first day of school pictures; lots of moms are lamenting their kids having their last first day. We wish that was happening at our house but Josey just can't do it. She can't retain new material - she has tried and we've both cried over it. Her pain can be debilitating, she remains too weak to maneuver even a half day at her school, and the sensory overload would be unbearable. I've been asked why I'd deprive Josey of experiencing her senior year. Seriously?! I'd never do that to her. What I'm doing FOR her is protecting whatever health advances she is able to make so she can have a future. Eventually she will take the ACT (we scheduled and re-scheduled it four times and finally checked reality and decided to just wait) and she plans to go to college.
A few kids sent Josey texts today from school. Apparently she still is still on the roll for a full set of classes at the high school. Just about the time school was out, she panicked, wondering if we are making a mistake, if she would be in trouble for missing school, if people will forget about her, if....
When she feels up to it, we plan to have senior pictures made, as we only half-jokingly say, "to commemorate still breathing."
Promise to be positive next time.