This new doctor is a leader in the field of Chronic Lyme treatment and after extensive research, we chose him and his staff because we believe they will treat the whole person - addressing Josey's pain more aggressively, her severe neurological symptoms, and her difficulties with sleep. They, like most LLMDs, do not accept insurance for any part of the payment for their services. The tragedy of having to choose between the protest and the doctor, is that we want to be a part of the change that is so needed in the medical and insurance industries, but can't because we need to travel out of state to a doctor who cannot accept insurance and continue to effectively treat Chronic Lyme.
Josey is disappointed about a decision not to go to the protest but desperately needs to meet with this new physician. He is in the Washington, D.C. area, near the protest, but we couldn't get an appointment that coincided with the protest dates. If you have a bracelet, please wear it and post pictures to Twitter, Facebook, or Instagram with the hashtag #fightlymewithJosey in the title or tagged on the picture, tweet, etc., as we enjoy checking this to see who's posting these. Several people used the hashtag but we can't see it because it's in the comments, so FYI.
Those who bought bracelets or donated toward a trip to The Mayday Project protest, check in with us and let us know if you're okay with us either donating the money to a Lyme disease foundation or using it toward the trip to see the doctor. We will be responsible with what we have been given. Thanks for supporting Josey and for both learning about Lyme and sharing the information with others.
If you'd like a bracelet, either comment on this post, send me an email (there's a link on this blog) or contact me via Facebook or Twitter. Thanks again.