Josey Fights Lyme
Contact Us
  • Home
  • Recipes and Remedies

Thoughts on entertaining a bored Lyme patient

4/13/2015

0 Comments

 

PictureLeft alone with an empty syringe, this happened. It's her blood. Just to see what it would be like.
First, a quick LLMD appointment update. We expected a medication adjustment at this doctor visit because of the terrible Herxing. However, she has made more progress than expected so meds will only be rearranged to try to help her body to tolerate them better.  She will have the PICC line for two more months and the doctor told us he sees signs that her immune system is beginning to work again!   

SO, Lyme patients spend a LOT of time bed.  Depending on the day's symptoms, maybe they can watch tv (not too loud), watch a video on the laptop (where the brightness is more easily controlled), listen to music (also not too loud), but the options are limited.  Lyme patients get bored when they're awake.  If you can't walk around, can't tolerate the noise/stimulation/light of going out, you end up in the dark at home.  Alone.  So, we use humor at our house and I never know what's going to be said or what's going to happen.  Laughter is great medicine.  Unless you're in pain.  Or have tummy trouble. 

We've observed a few things but mostly that dark humor is our favorite and nothing is off limits, including family (we love you!), religion, death, pain, you name it.    We've decided pants are optional. You may want to warn us before you show up.... Dinner is a great time to discuss disturbing topics. Not "Oh, I'm so worried about this," but whatever the most socially unacceptable thing is that any person can currently come up with. There's a bucket list started but it's not like most people's.  Number 1 is to put a traffic cone on the Duke of Wellington.  You'll have to look that one up on your own.  Which leads me to another thing we've done.  Look up random things on Google, just to see how our search sentences are completed.  Ask Siri random questions.  Take control of dad's television from another room with your tablet.  You get the idea. Feel free to send us ideas on how to entertain a bored Lyme patient.  
   

0 Comments

Your comment will be posted after it is approved.


Leave a Reply.

    Archives

    September 2015
    April 2015
    March 2015
    January 2015
    December 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014

    Categories

    All
    Chronic Illness
    Handicapped Parking
    LLMD
    Lyme Disease
    Lyme Symptoms
    Teens With Lyme

    Picture
    Josey and Ally - best friends since elementary school
    Picture
    Josey

    Authors
    Julie and Josey

    Julie is Josey's mom.  There are two other awesome kids in the house, and a great dad/husband.  We're all in this together.

Proudly powered by Weebly