Left alone with an empty syringe, this happened. It's her blood. Just to see what it would be like. First, a quick LLMD appointment update. We expected a medication adjustment at this doctor visit because of the terrible Herxing. However, she has made more progress than expected so meds will only be rearranged to try to help her body to tolerate them better. She will have the PICC line for two more months and the doctor told us he sees signs that her immune system is beginning to work again!
SO, Lyme patients spend a LOT of time bed. Depending on the day's symptoms, maybe they can watch tv (not too loud), watch a video on the laptop (where the brightness is more easily controlled), listen to music (also not too loud), but the options are limited. Lyme patients get bored when they're awake. If you can't walk around, can't tolerate the noise/stimulation/light of going out, you end up in the dark at home. Alone. So, we use humor at our house and I never know what's going to be said or what's going to happen. Laughter is great medicine. Unless you're in pain. Or have tummy trouble.
We've observed a few things but mostly that dark humor is our favorite and nothing is off limits, including family (we love you!), religion, death, pain, you name it. We've decided pants are optional. You may want to warn us before you show up.... Dinner is a great time to discuss disturbing topics. Not "Oh, I'm so worried about this," but whatever the most socially unacceptable thing is that any person can currently come up with. There's a bucket list started but it's not like most people's. Number 1 is to put a traffic cone on the Duke of Wellington. You'll have to look that one up on your own. Which leads me to another thing we've done. Look up random things on Google, just to see how our search sentences are completed. Ask Siri random questions. Take control of dad's television from another room with your tablet. You get the idea. Feel free to send us ideas on how to entertain a bored Lyme patient.
SO, Lyme patients spend a LOT of time bed. Depending on the day's symptoms, maybe they can watch tv (not too loud), watch a video on the laptop (where the brightness is more easily controlled), listen to music (also not too loud), but the options are limited. Lyme patients get bored when they're awake. If you can't walk around, can't tolerate the noise/stimulation/light of going out, you end up in the dark at home. Alone. So, we use humor at our house and I never know what's going to be said or what's going to happen. Laughter is great medicine. Unless you're in pain. Or have tummy trouble.
We've observed a few things but mostly that dark humor is our favorite and nothing is off limits, including family (we love you!), religion, death, pain, you name it. We've decided pants are optional. You may want to warn us before you show up.... Dinner is a great time to discuss disturbing topics. Not "Oh, I'm so worried about this," but whatever the most socially unacceptable thing is that any person can currently come up with. There's a bucket list started but it's not like most people's. Number 1 is to put a traffic cone on the Duke of Wellington. You'll have to look that one up on your own. Which leads me to another thing we've done. Look up random things on Google, just to see how our search sentences are completed. Ask Siri random questions. Take control of dad's television from another room with your tablet. You get the idea. Feel free to send us ideas on how to entertain a bored Lyme patient.
